TW: Cancer and bereavement

Susan Yaguda is passionate about knitting as a form self-care. She is an oncology nurse who has used knitting with both staff and patients at the Cancer Institute in Charlotte, North Carolina. These have included setting up a knitting group for people who are receiving chemotherapy and developing a study into whether knitting can help with the symptoms of ‘chemobrain’ (problems with memory and thinking after chemotherapy).

We also speak about the importance of supporting health care staff particularly since the pandemic, and the potential for offering knitting as a self-care intervention to prevent burnout.

You can find the full transcript for this episode on the blog.

You can follow Susan on Instagram @knitforhealth

Find out more about Project Knitwell

Find out more about the podcast at the website

Follow Mia on Instagram @knittingistherapeutic

Transcript
Mia Hobbs:

Hello and welcome back to series two of the Why I

Mia Hobbs:

Knit podcast. My name is Dr. Mia Hobbs and I'm a clinical

Mia Hobbs:

psychologist who's passionate about knitting and its benefits

Mia Hobbs:

for our mental wellbeing. Each episode I interview a different

Mia Hobbs:

knitter about why they knit and how it benefits their mental

Mia Hobbs:

health. This week on the podcast I'm joined by Susan Yaguda.

Mia Hobbs:

Susan is an oncology nurse working at The Cancer Institute

Mia Hobbs:

in Charlotte, North Carolina. Susan joins me to talk about how

Mia Hobbs:

knitting has benefited her own wellbeing and also how she's

Mia Hobbs:

used knitting in her place of work with both staff and

Mia Hobbs:

patients. Please note that during our discussion, we do

Mia Hobbs:

talk about cancer and bereavement.

Mia Hobbs:

So hi, Susan. Welcome to the podcast.

Susan Yaguda:

Good morning! Thank you.

Mia Hobbs:

It's afternoon here but morning where you are.

Susan Yaguda:

Oh, it's good morning for me!

Mia Hobbs:

What's the time where you are?

Susan Yaguda:

It's 8 o'clock.

Mia Hobbs:

8 o'clock, so early! Thank you so much for joining

Mia Hobbs:

me.

Susan Yaguda:

That's okay, I'm a morning person.

Mia Hobbs:

Oh that's good, me too. I always start the podcast

Mia Hobbs:

by asking where your story with knitting began.

Susan Yaguda:

I grew up in a family of knitters, to be honest

Susan Yaguda:

with you. I'm the youngest of six. My mom, my aunts, my

Susan Yaguda:

sisters all knit, growing up. For some reason, I did not. I'm

Susan Yaguda:

not sure why. I did some cross stitch and that type of thing

Susan Yaguda:

and really enjoyed that. And then when my children were in

Susan Yaguda:

Montessori school, they were quite young, and another mom,

Susan Yaguda:

who was an amazing knitter, said, "Hey, could we do a

Susan Yaguda:

mother-daughter knitting group?" And so I was up for that, and

Susan Yaguda:

there were several other moms. So we would get together, the

Susan Yaguda:

kids would kind of knit for a few minutes, and then they'd go

Susan Yaguda:

off and do their own thing. But we really, as parents, enjoyed

Susan Yaguda:

the sense of community and of course learning a new skill.

Susan Yaguda:

That was about 20 years ago, I think, as my daughter is now 28.

Susan Yaguda:

So I think she was around 8 years old when we did that. And

Susan Yaguda:

I haven't stopped since. It's just been such a blessing to my

Susan Yaguda:

life for so many reasons that I'm really grateful to that mom

Susan Yaguda:

for spearheading it and getting me started on it.

Mia Hobbs:

So you hadn't knitted at all before that point?

Susan Yaguda:

No.

Mia Hobbs:

Oh wow!

Susan Yaguda:

The funny thing is now, my sisters and my mom... my

Mia Hobbs:

Yeah. So it really feels like part of your

Mia Hobbs:

mom is quite elderly so she doesn't knit as much now, but my

Mia Hobbs:

two sisters and I get together with my mom (particularly before

Mia Hobbs:

the pandemic we would) for what we would call a girls weekend.

Mia Hobbs:

We all had our knitting projects and have tea and good food and

Mia Hobbs:

wine and just really enjoy a nice weekend together, and

Mia Hobbs:

that's such precious time when I think about it now, that we just

Mia Hobbs:

enjoyed one another's company, but it was always around

Mia Hobbs:

knitting too. Sometimes we would go to the local yarn shop where

Mia Hobbs:

my mom lives and just enjoy that as well. So now we all share

Mia Hobbs:

patterns. We ask each other about different techniques we

Mia Hobbs:

might have questions about, and so it's really become something

Mia Hobbs:

that I'm very... I'm very close to my sisters but it's been

Mia Hobbs:

really a nice thing to bond us as well.

Mia Hobbs:

connection with your family now?

Susan Yaguda:

Yeah!

Mia Hobbs:

And do your kids still knit?

Susan Yaguda:

I have a son and a daughter, and thinking back like

Susan Yaguda:

20 years ago, I did teach my son how to knit and he's actually

Susan Yaguda:

very good. He didn't keep it up, though. And my daughter, she'll

Susan Yaguda:

pick it up from time to time. She actually lives in the UK

Susan Yaguda:

now. And so, you know, being away from home has been

Susan Yaguda:

difficult during these past couple of years. And so I really

Susan Yaguda:

have encouraged her because it's been so helpful to me to have

Susan Yaguda:

something in my hands. And so she'll pick it up now and then,

Susan Yaguda:

and does still enjoy it, so who knows what she might do in 20

Susan Yaguda:

years? So we'll see.

Mia Hobbs:

I think lots of people that I've interviewed,

Mia Hobbs:

and certainly for me, have had long dormant periods where they

Mia Hobbs:

didn't knit, and then suddenly it was the right moment in their

Mia Hobbs:

life, and they pick it up and kind of go with it again. You

Mia Hobbs:

said there are many ways it's been helpful for you. I'd love

to hear more about that:

about why you knit and how it's been

to hear more about that:

helpful for you.

Susan Yaguda:

So the practicality of it - I really

Susan Yaguda:

enjoy giving homemade gifts, handmade gifts to people. So

Susan Yaguda:

that's definitely part of it. I'm a little choosier now, who I

Susan Yaguda:

gift with my knitting, because I think I hear other knitters say

Susan Yaguda:

too, some people don't quite get it. But definitely, I have an

Susan Yaguda:

appreciative pool of family and friends, and enjoy doing that

Susan Yaguda:

for them. But really it's a mindfulness practice for me.

Susan Yaguda:

It's definitely a way... sometimes for me in the morning,

Susan Yaguda:

when I'm having my coffee, I'll just knit even if it's just for

Susan Yaguda:

five minutes. It just sets my day straight with a calmer

Susan Yaguda:

attitude, I think, about going into the day. And then

Susan Yaguda:

definitely towards the end of the day, too, I might have a cup

Susan Yaguda:

of tea and just pick up my knitting again. Even if I only

Susan Yaguda:

have a few minutes to do it, I still appreciate those moments,

Susan Yaguda:

just to de-stress, to kind of let go of anything that was

Susan Yaguda:

going on during the day so that I can get a restful night's

Susan Yaguda:

sleep. It really is a very big mindfulness practice for me.

Susan Yaguda:

Other than my sisters, I don't knit a whole lot with others.

Susan Yaguda:

But there is a sense of community, I think, around the

Susan Yaguda:

knitting world, whether that's through social media or going to

Susan Yaguda:

a local yarn shop. You can always talk to a knitter about

Susan Yaguda:

what they're doing, what they're interested in, and it inevitably

Susan Yaguda:

leads to other conversations too, that keep that kind of

Susan Yaguda:

sense of connectivity amongst us. And I think, particularly

Susan Yaguda:

during this pandemic time where we often feel disconnected, it's

Susan Yaguda:

really an important tool to to being connected with one

Susan Yaguda:

another. In my work it's really been important to connect with

Susan Yaguda:

patients even, and to allow them to connect with one another. So

Susan Yaguda:

I would say between being able to produce something that is

Susan Yaguda:

homemade and I can gift from my heart, to the mindfulness

Susan Yaguda:

practice, and then the connectivity piece of it, too,

Susan Yaguda:

it's just been a really rich hobby to have in my life.

Mia Hobbs:

I'd love to go on to ask you, in a minute, more about

Mia Hobbs:

your work and how you've used knitting there. But first of

Mia Hobbs:

all, I'm curious for yourself, like have you got specific

Mia Hobbs:

things you prefer to knit? Does it matter what the knitting is,

Mia Hobbs:

in terms of the techniques?

Susan Yaguda:

Yeah. So I usually have two things typically going

Susan Yaguda:

at once, and one is kind of a no-brainer - I can sit in a

Susan Yaguda:

meeting and it helps me pay attention, but not have to count

Susan Yaguda:

or follow a pattern or that type of thing. And then I like to

Susan Yaguda:

knit just about anything. I've gotten into socks and go in

Susan Yaguda:

spurts with that. Mittens... I had like a run on mittens! And

Susan Yaguda:

I'm working on a sweater right now for a friend's birthday.

Susan Yaguda:

Shawls... I really, really love to make shawls, especially if

Susan Yaguda:

the designer has some really clear instructions. Hats off to

Susan Yaguda:

designers! I think that it's just magic what they do, you

Susan Yaguda:

know, to be able to create a pattern, put it on paper, so

Susan Yaguda:

that I can just blindly follow the directions and then voila!

Susan Yaguda:

Here comes some beautiful piece, you know, just because they've

Susan Yaguda:

had that skill set to do that. So I do love to make shawls. I

Susan Yaguda:

haven't done certain techniques, like brioche I haven't tried.

Mia Hobbs:

I haven't either, actually! I wondered whether

Mia Hobbs:

maybe this was the year for me. [Laughs]

Susan Yaguda:

Yeah, me too! [Laughs] Yeah, so maybe try

Susan Yaguda:

that. I've done some lace work, and again I've enjoyed that,you

Susan Yaguda:

know, as long as I am able to pay attention to it as well. So

Susan Yaguda:

having something that's mindless, and then having

Susan Yaguda:

something where I do have to pay attention a little bit. I love

Susan Yaguda:

cables - to me they're magic as well, just how slipping one

Susan Yaguda:

direction or another just makes this beautiful pattern! And it's

Susan Yaguda:

fun to work on those too.

Mia Hobbs:

So have you got times when you feel like you need the

Mia Hobbs:

more complicated pattern? It sounds like there are times

Mia Hobbs:

where you need the simple one, which is if you've got to pay

Mia Hobbs:

attention to something else. I'm interested in the times you

Mia Hobbs:

might need the more complicated one.

Susan Yaguda:

Yeah, when you have to pay attention to

Susan Yaguda:

something, follow directions, make sure you're counting

Susan Yaguda:

properly, it kind of takes your mind away from other things that

Susan Yaguda:

might have been creating stress in your life or things you kind

Susan Yaguda:

of need to let go of. It's a nice distraction, if you will.

Susan Yaguda:

And then after working on something for a bit, the stuff

Susan Yaguda:

that was bothering you previously just doesn't seem to

Susan Yaguda:

be a big deal anymore and you can kind of let it go until

Susan Yaguda:

maybe the next day. And you'll address it with fresh eyes and

Susan Yaguda:

be able to maybe be more productive in how to manage

Susan Yaguda:

something that was going on. So there's also definitely times

Susan Yaguda:

where I'm like, "I can't concentrate on this right now.

Susan Yaguda:

I'm just going to enjoy the soothing aspect of the rhythm of

Susan Yaguda:

knitting and just feeling it in my hands, and go forward with

Susan Yaguda:

that, too."

Mia Hobbs:

Yeah. You're a nurse, working in oncology, and I'm

Mia Hobbs:

really interested to hear about how you've brought knitting into

Mia Hobbs:

your place of work. I'd love to hear more about that.

Susan Yaguda:

Yeah, thank you! So I manage a team of

Susan Yaguda:

integrative providers. We have a wide array of services. So we

Susan Yaguda:

don't treat cancer itself, but we help support people through

Susan Yaguda:

their cancer journey at any aspect along the way. And part

Susan Yaguda:

of my team is we have a group of artists. And so one of my

Susan Yaguda:

artists had started with us as a volunteer, and then we were able

Susan Yaguda:

to contract and bring her on, and she's just amazing. My whole

Susan Yaguda:

team is amazing, but she was really just open to anything.

Susan Yaguda:

And I said, "Hey, I really want to start a knitting and crochet

Susan Yaguda:

circle for our patients and care partners." And she was like,

Susan Yaguda:

"Sure, okay, but I need to learn how." [Laughs] So she went off

Susan Yaguda:

and took some lessons at a local yarn shop. And, of course, this

Susan Yaguda:

was several years ago, so she's a great knitter now, as well.

Susan Yaguda:

And so she started this group. Now it's on Zoom because we're

Susan Yaguda:

not meeting in person (hopefully, at some point in the

Susan Yaguda:

future), but I'm really happy that we were able to still

Susan Yaguda:

provide things virtually even, to help people stay connected.

Susan Yaguda:

And so the purpose of the group was not to do great knitting,

Susan Yaguda:

just like the purpose of the art programme is not to create great

Susan Yaguda:

art but it's really to use it as a processing opportunity to have

Susan Yaguda:

patients and care partners support one another. There's

Susan Yaguda:

something about when people have something that they're working

Susan Yaguda:

on in their hands, and for this group, obviously, it was

Susan Yaguda:

knitting, the conversation becomes much better flowing, I

Susan Yaguda:

think. People feel a little bit more comfortable sharing. They

Susan Yaguda:

find that they have shared experiences and can maybe have

Susan Yaguda:

their own experience authenticated because they're

Susan Yaguda:

hearing it from somebody else. It's just a very healing process

Susan Yaguda:

to have that type of support. And so Deborah, our artist that

Susan Yaguda:

was facilitating this and continues to, really her role is

Susan Yaguda:

just to maintain inclusivity with the group, to make sure

Susan Yaguda:

that the environment remains positive, that people feel

Susan Yaguda:

comfortable talking and sharing. And it's been just a really

Susan Yaguda:

positive experience all around. We also had some fun things come

Susan Yaguda:

out of that for community. So in our community, there's several

Susan Yaguda:

organisations. We're very philanthropically dependent, and

Susan Yaguda:

they help support us. And one is an organisation called 24

Susan Yaguda:

Foundation that does a 24-hour bike ride every summer in

Susan Yaguda:

Charlotte, where I live. It's a fundraiser, and a lot of those

Susan Yaguda:

funds go to support the programmes that I manage. And so

Susan Yaguda:

we got a bicycle, an older bicycle, and the people in the

Susan Yaguda:

knitting and crochet circle yarn bombed it! It's so cool-looking.

Susan Yaguda:

They did an amazing job. They had yarn bombed two chairs the

Susan Yaguda:

year previously, and we displayed them at a gala that we

Susan Yaguda:

had too, but this bike was something that we could give

Susan Yaguda:

back to the organisation that supports us, just as a way to

Susan Yaguda:

say thank you for all. So we bring it out when we have events

Susan Yaguda:

with them, and they in turn have gifted it back to us, and it's

Susan Yaguda:

actually hanging in our cancer rehab gym. But it's always just

Susan Yaguda:

a really nice reminder that we are all community supporting one

Susan Yaguda:

another through that. So that's been just fun. The chairs that

Susan Yaguda:

they did, it was really whimsical, little mice and

Susan Yaguda:

spider webs, and they did a beautiful job with that. And

Susan Yaguda:

those are on display in our cancer institution now, so

Susan Yaguda:

anybody can walk by and just enjoy taking a look at them. And

Susan Yaguda:

then from a medical perspective, I mean this is purely anecdotal,

Susan Yaguda:

but we had several patients who got chemotherapies that cause

Susan Yaguda:

neurotoxicity, and they can get neuropathy in their hands and

Susan Yaguda:

their feet, like a tingling and numbness. It really can be

Susan Yaguda:

distressing and impactful on things, even like buttoning a

Susan Yaguda:

shirt or walking safely, that type of thing. And one woman who

Susan Yaguda:

was really involved in this group also said that the

Susan Yaguda:

knitting helped her neuropathy, and she said, "If I could figure

Susan Yaguda:

out a way to knit with my toes, I could address it in my feet as

Susan Yaguda:

well!" But she swore that it was just keeping herself moving like

Susan Yaguda:

that, and maybe the tactile part of knitting, that helped her. So

Susan Yaguda:

that would be something that I would love to study at some

Susan Yaguda:

point. Can we really be impactful on that with something

Susan Yaguda:

so simple and low cost and extremely low risk, and make an

Susan Yaguda:

impact on something that really can be distressing to somebody

Susan Yaguda:

who's gone through cancer treatment.

Mia Hobbs:

What's the kind of feedback you've had from people

Mia Hobbs:

who've engaged in the knitting, so some of the people receiving

Mia Hobbs:

treatment for cancer?

Susan Yaguda:

It's really heartwarming to go into the

Susan Yaguda:

infusion suite and see people there knitting as a way to pass

Susan Yaguda:

the time. Oftentimes, they're there for several hours.

Mia Hobbs:

Is that when they're receiving their chemotherapy?

Susan Yaguda:

Yeah. And they really appreciate the community.

Susan Yaguda:

They come together when... you know, inevitably we have to say

Susan Yaguda:

goodbye to certain people at different times, and they really

Susan Yaguda:

come together as a community to support one another through that

Susan Yaguda:

grieving process. I think it also shines the light on...

Susan Yaguda:

well, for all of us but especially if you also are

Susan Yaguda:

dealing with cancer... your own mortality, and really coming to

Susan Yaguda:

terms with that, because you've lost somebody that you've been

Susan Yaguda:

close to. So I really appreciate that they form kind of a support

Susan Yaguda:

group amongst themselves. So that has been definitely one of

Susan Yaguda:

the outcomes that I was hoping for. The other thing is they

Susan Yaguda:

really have appreciated, particularly during the

Susan Yaguda:

pandemic, having knitting as a hobby to continue with during

Susan Yaguda:

their time when they've had to be more isolated, as well. The

Susan Yaguda:

other thing that is so cool about this group is they also...

Susan Yaguda:

(this wasn't intentional, they just kind of came up with this

Susan Yaguda:

organically)... they'll knit caps for patients who have lost

Susan Yaguda:

their hair because of chemotherapy, scarves,

Susan Yaguda:

fingerless mitts, that type of thing, and then they go to our

Susan Yaguda:

resource centre and then anybody who's in need can take something

Susan Yaguda:

like that. To know that it came from somebody else who has

Susan Yaguda:

walked your path as well, I think is really meaningful.

Mia Hobbs:

There's a project here actually, that I've seen on

Mia Hobbs:

the news, called Knitted Knockers. I don't know if you've

Mia Hobbs:

heard of that?

Susan Yaguda:

Oh yeah! We did that. People continue to make

Susan Yaguda:

knockers. It's really taken off, hasn't it? It's so fun. And, you

Susan Yaguda:

know, women who require a prosthesis really like the

Susan Yaguda:

knitted knockers. They're soft, they're light, they're washable,

Susan Yaguda:

you can form them to fit yourselves perfectly, they're

Susan Yaguda:

free... you know, prostheses can be very expensive. With some

Susan Yaguda:

local yarn shops in our community, we did a knitted

Susan Yaguda:

knocker campaign, and then the fire department has a pink

Susan Yaguda:

firetruck and so they stopped at the yarn shops, and we filled

Susan Yaguda:

the firetruck up with knitted knockers! There were bags of

Susan Yaguda:

them! [Laughs] And then they delivered them to the Cancer

Susan Yaguda:

Institute, then we had to sort them and get them where they

Susan Yaguda:

needed to be in that way. But that was such, again, another

Susan Yaguda:

fun community project.

Mia Hobbs:

It sounds like some of the people in the group have

Mia Hobbs:

been very inventive about finding ways to have a more kind

Mia Hobbs:

of group knitting experience. Because I guess a lot of us,

Mia Hobbs:

even if we're knitting in a group, often the project is just

Mia Hobbs:

ours, I suppose, or we might be knitting something that's just

Mia Hobbs:

ours. It's not that often you knit something that is part of a

Mia Hobbs:

kind of cooperative project.

Susan Yaguda:

Yeah, we really saw it particularly when they

Mia Hobbs:

Yeah. And have you had the opportunity to go and

Mia Hobbs:

were able to meet in person and work on the yarn bombing pieces,

Mia Hobbs:

because they had to kind of plan it out together. And again,

Mia Hobbs:

nobody was telling anybody, "Here, you have to do this." It

Mia Hobbs:

just all came very organically. But it was fun to kind of be a

Mia Hobbs:

fly on the wall and just peek in and watch them and hear their

Mia Hobbs:

conversations. It just really fills my heart because that was

Mia Hobbs:

exactly what I wanted when I said, "Can we start this?"

Mia Hobbs:

join in with knitting with them at all? Or is that difficult?

Susan Yaguda:

I haven't since they have gone to Zoom, and it's

Susan Yaguda:

also during my work day. So sometimes I don't have the time

Susan Yaguda:

to do that during the work day. But when they did meet in

Susan Yaguda:

person, I would often just stop by, because they're lovely

Susan Yaguda:

people anyway so I would always love to catch up with them

Susan Yaguda:

regardless, but just to again, like I said, hear their

Susan Yaguda:

conversation and see what they were working on. To see them

Susan Yaguda:

helping each other, because there were some that were very,

Susan Yaguda:

very skilled knitters helping others that are maybe new at

Susan Yaguda:

something, new to knitting or new at a technique, and really

Susan Yaguda:

to have that fellowship within the group is really precious to watch.

Mia Hobbs:

Yeah. And that's brilliant for both parties,

Mia Hobbs:

isn't it? It's brilliant to be somebody who can share a skill.

Mia Hobbs:

That gives you a sense of self esteem, I guess, doesn't it? And

Mia Hobbs:

also to be able to be somewhere where you think, "Oh, these

Mia Hobbs:

experienced people can help me with this thing I'd like to get

Mia Hobbs:

better at."

Susan Yaguda:

Yeah, definitely. It definitely goes both

Susan Yaguda:

directions.

Mia Hobbs:

Yeah. And you mentioned that you've been

Mia Hobbs:

involved in a research project to do with knitting. I'd love to

Mia Hobbs:

hear a bit more about that.

Susan Yaguda:

Yeah, sure. So one thing that patients receiving

Susan Yaguda:

chemotherapy sometimes experience is something called

Susan Yaguda:

chemo brain. And if you're not familiar with that, it is just

Susan Yaguda:

difficulty after finishing chemo or even during, with tasks that

Susan Yaguda:

normally would have come easily to you. So it could be things

Susan Yaguda:

like sequencing or memory issues or word finding even sometimes,

Susan Yaguda:

and it's very distressing to patients to experience this. And

Susan Yaguda:

it's especially distressing when they finally finish treatment

Susan Yaguda:

and then they're like, "Okay, I'm going back to work." You

Susan Yaguda:

know, it's like some sense of hopefully some normalcy in their

Susan Yaguda:

lives again, but then they're having really some difficulties

Susan Yaguda:

functioning to their pre-cancer diagnosis levels. And so one of

Susan Yaguda:

my colleagues is a neuropsychologist and she

Susan Yaguda:

started knitting because we... This is another story, but we

Susan Yaguda:

started with my teammates. We had a couple of knit nights and

Susan Yaguda:

taught them how to knit, and several of my teammates

Susan Yaguda:

continued to knit as well, which has been really fun. And Jen,

Susan Yaguda:

the neuropsychologist, is one of those that has continued to

Susan Yaguda:

that. And so finally, I was like, "I know how knitting makes

Susan Yaguda:

me feel, as far as calming my mind and all of that." And we

Susan Yaguda:

got talking about the bilateral aspects of knitting, and we also

Susan Yaguda:

were thinking about chemo brain. It's not fully understood, why

Susan Yaguda:

it occurs. It could be related to inflammation or who knows.

Susan Yaguda:

But we were looking through the literature and did not see

Susan Yaguda:

anything that looked at increasing neuroplasticity

Susan Yaguda:

around cancer-related cognitive impairments. And so we wanted to

see:

could teaching somebody to knit make an impact on their

see:

cognitive impairment? So we did a pilot study, and we had the

see:

support from Universal Yarn, which is a big yarn company,

see:

particularly here in the US - I think it is in Europe, too. They

see:

have a headquarters very close to Charlotte, and they provided

see:

us with yarn and with needles and really put together these

see:

nice kits for the study. And we enrolled patients who had

see:

finished the chemotherapy and were self-describing some

see:

cognitive impairment. And they could not have been knitters

see:

before, so it had to be completely a new skill. And then

see:

they came in and we gave them a battery of neuropsych tests,

see:

which are all validated for the age group within the inclusion

see:

criteria. And then we had a volunteer working with us, and

see:

she taught them to knit. And so she would have groups of maybe

see:

1-3 women. They were all women. It wasn't designed to be all

see:

women, but that's the way it fell, which I think is another

see:

thing I'd like to change at some point along the road.

Mia Hobbs:

So that was who opted in?

Susan Yaguda:

Yeah. They learned to knit. They got a project - it

Susan Yaguda:

was a scarf. And then they had another lesson, we gave them

Susan Yaguda:

videos, we checked in with them every week, and then 8 weeks

Susan Yaguda:

later they came back in. They had to have at least 8 inches of

Susan Yaguda:

their scarf done so we knew that they were doing it. So we had to

Susan Yaguda:

measure it, and then they were re-tested. And what we found was

Susan Yaguda:

really fascinating, in my opinion. All of them tested

Susan Yaguda:

within the normal range at the start; however, it may have been

Susan Yaguda:

low for them. They were all college educated, they were all

Susan Yaguda:

professionals, that's the group that we got for this pilot.

Susan Yaguda:

However, the distress levels were quite high across the

Susan Yaguda:

group. Post-intervention, they all improved cognitively, in

Susan Yaguda:

certain domains at least. I think almost 70% of the group

Susan Yaguda:

improved cognitively in at least one of the domains that we

Susan Yaguda:

tested. Across the board, they all significantly reported less

Susan Yaguda:

distress. That was just really validating, that there's

Susan Yaguda:

something going on, whether it is neuroplasticity, or whether

Susan Yaguda:

it's decreasing stress so you're able to manage some of those

Susan Yaguda:

challenges better. I mean, who knows? We're really eager to dig

Susan Yaguda:

a little bit deeper into the whole 'what's happening behind

Susan Yaguda:

the veil' kind of thing. We had to close accrual early because

Mia Hobbs:

Because like you said, from a research

Mia Hobbs:

of the pandemic. We ended up with 16 people, I think, going

Mia Hobbs:

through and we'd wanted to get 18, I think. So just a little

Mia Hobbs:

perspective, it would be great. It's such a shame you had to

Mia Hobbs:

bit short of our original goal, but enough to have some

Mia Hobbs:

significant data. And to this day, I hear from people in the

Mia Hobbs:

finish early because of COVID. And it'd be great to do a trial

Mia Hobbs:

study and they're still knitting! That's another win of

Mia Hobbs:

the whole thing. So I look at this as such a low-hanging fruit

Mia Hobbs:

with a control group and lots of measures. But even without that,

Mia Hobbs:

for an intervention for a condition that is incredibly

Mia Hobbs:

distressing for our patients, and how simple it could be, how

Mia Hobbs:

it sounds like it has offered a great benefit, even just

Mia Hobbs:

inexpensive it could be, how low risk it could be to really

Mia Hobbs:

provide this for people who are interested.

Mia Hobbs:

anecdotally, or in terms of stress reduction, or giving

Mia Hobbs:

people a coping mechanism to take with them for the rest of

Mia Hobbs:

their lives. That sounds like it actually has been a super

Mia Hobbs:

helpful intervention already.

Susan Yaguda:

Yeah. And the neuropsych tasks were all

Susan Yaguda:

validated tasks, so we really felt confident about those. They

Susan Yaguda:

weren't tasks that you could do well with repetition, you know,

Susan Yaguda:

we made sure we didn't have that practice benefit with the tests

Susan Yaguda:

that she chose. So we do know that there was benefit. But

Susan Yaguda:

yeah, to have a control group would have been nice, since they

Susan Yaguda:

were each their own control, but there's so many areas that we

Susan Yaguda:

could dig in and explore further that it makes it exciting, for

Susan Yaguda:

sure.

Mia Hobbs:

And I think you mentioned, while we were

Mia Hobbs:

messaging about setting up this conversation, that you'd quite

Mia Hobbs:

like to have a group for professionals as well, so for

Mia Hobbs:

healthcare staff. I haven't done it formally for that purpose,

Mia Hobbs:

but in the past I've informally ended up having groups of

Mia Hobbs:

colleagues in health settings to mainly create gifts for somebody

Mia Hobbs:

who's having a baby, but have really noticed the positive

Mia Hobbs:

effect it's had on team morale, and that we've had different

Mia Hobbs:

conversations, that people have been kind of taking a lunch

Mia Hobbs:

break for half an hour, once a week, to sit and knit together,

Mia Hobbs:

and that it really did feel beneficial, I suppose, on a team

Mia Hobbs:

level. I'm interested in what your hopes were for that.

Susan Yaguda:

Yeah, definitely. So we did do for just my

Susan Yaguda:

department. At the time, we were in a different location while

Susan Yaguda:

our current building was being built, and it was tight

Susan Yaguda:

quarters, you know, which has its own challenges. But we had a

Susan Yaguda:

couple of knit nights, and it was just a time again, for

Susan Yaguda:

whomever wanted to, to come together, learn to knit. And

Susan Yaguda:

then, similar to what you're talking about, we did find

Susan Yaguda:

people sitting at lunchtime knitting. And then we also found

Susan Yaguda:

we were able to help each other out with questions about a

Susan Yaguda:

skill, or, "Oh, I dropped a stitch. What happened here?",

Susan Yaguda:

that type of thing. And it did allow us as a group of

Susan Yaguda:

colleagues to interact on a bit of a different level. And then

Susan Yaguda:

several of my colleagues really use knitting now as a self care

Susan Yaguda:

practice. It's a relaxing thing that they go to daily, almost,

Susan Yaguda:

in order to just take better care of themselves. So that's

Susan Yaguda:

been really positive. I think, you know, it's no surprise to

Susan Yaguda:

anybody how strained the health care profession is right now,

Susan Yaguda:

globally. And interestingly, before the pandemic, I had been

Susan Yaguda:

working with some other people on my team on moral injury and

Susan Yaguda:

resilience, and what can we do to help support one another, to

Susan Yaguda:

build up resilience and address moral injury in a positive way.

Susan Yaguda:

And then to think that we were doing that work before COVID,

Susan Yaguda:

and now what people are having to deal with still two years

Susan Yaguda:

later, it's unfathomable. And I really feel like we need to now

Susan Yaguda:

kind of shift gears and look at trauma care. How are we helping

Susan Yaguda:

our colleagues through trauma, because that's what this has

Susan Yaguda:

been, for so many people. And I don't want to simplify things to

Susan Yaguda:

the point of saying, "Oh, just give everybody knitting needles

Susan Yaguda:

and some yarn, and it's all fine." But I do think that

Susan Yaguda:

knitting serves a role in the toolbox as a self care practice,

Susan Yaguda:

as a way of soothing. We know that the rhythm of the movement,

Susan Yaguda:

of using both hands, has neurological impact. And so I do

Susan Yaguda:

think that it could be a useful tool for colleagues to be able

Susan Yaguda:

to use for self care. There was a study that some nurses in

Susan Yaguda:

Washington did, that I think Project Knitwell helped support.

Susan Yaguda:

And again, this was several years ago, with oncology nurses.

Susan Yaguda:

They taught them to knit, and the outcomes and the feedback

Susan Yaguda:

from those who participated was really positive, how it was

Susan Yaguda:

really soothing. And when I was re-reading the manuscript,

Susan Yaguda:

"soothing" kind of kept coming up, and I kind of feel like

Susan Yaguda:

yeah, it is soothing. And that's maybe part of the benefit of us

Susan Yaguda:

bringing it to somebody. We're not going to fix the issues in

Susan Yaguda:

our healthcare system by knitting, but if we can help

Susan Yaguda:

somebody feel better for a little bit of time and then be

Susan Yaguda:

able to be a bit more refreshed to go handle what they need to

Susan Yaguda:

handle, then maybe that's our role at this point. So I'm

Susan Yaguda:

looking at creating honestly like a toolkit for my

Susan Yaguda:

colleagues, our teammates across our system, that has a variety

Susan Yaguda:

of ways to take care of yourself and to address the trauma of

Susan Yaguda:

what you have experienced during all this time. So I think it

Susan Yaguda:

will definitely have a role there.

Mia Hobbs:

Yeah, I think that's really true. I've had quite a

Mia Hobbs:

few health professionals get in touch with me since starting the

Mia Hobbs:

podcast, talking about the idea of having a group with their

Mia Hobbs:

colleagues. And I think the tricky thing is, like you said,

Mia Hobbs:

it doesn't have to be just knitting, and knitting isn't

Mia Hobbs:

going to be for everybody, but the idea of maybe the system or

Mia Hobbs:

prioritising self care for the health care staff, because you

Mia Hobbs:

can't pour from an empty cup. And in the pandemic, it started

Mia Hobbs:

off as a sprint and it's now a marathon. But people are just

Mia Hobbs:

getting slowly more exhausted, I guess, and like you said,

Mia Hobbs:

traumatised. But it is interesting, the idea of one of

Mia Hobbs:

the trauma therapies, EMDR, is focused on using bilateral

Mia Hobbs:

movements a bit similar to knitting. And when I spoke to

Mia Hobbs:

Betsan Corkhill, I interviewed her for series one about that,

Mia Hobbs:

and she said there have been ideas about doing some studies

Mia Hobbs:

using knitting as the bilateral movement in the EMDR, so trauma

Mia Hobbs:

processing. So it'd be really interesting. I think the tricky

Mia Hobbs:

thing is funding for all of these studies.

Susan Yaguda:

Most definitely.

Mia Hobbs:

And also for the self care for the health

Mia Hobbs:

professionals! That's also the problem, isn't it? Getting that

Mia Hobbs:

as a priority and funding it.

Susan Yaguda:

Yeah, most definitely. However, if you look

Susan Yaguda:

at the cost of replacing a critical care nurse, for

Susan Yaguda:

example, it's quite costly, especially somebody who has a

Susan Yaguda:

lot of experience. And then who are we replacing them with? So I

Susan Yaguda:

think that's one thing. And, you know, I'm talking about health

Susan Yaguda:

care professionals but it's really across the board. My

Susan Yaguda:

heart breaks for our teachers, for parents with young children,

Susan Yaguda:

and how they're managing all of this and trying to work and keep

Susan Yaguda:

their children happy and healthy. It's across the board -

Susan Yaguda:

service providers of any sort. Our resources are not an

Susan Yaguda:

unending bucket. There is a bottom to that. So if we don't

Susan Yaguda:

start to really take care of what we've got, it's going to be

Susan Yaguda:

quite impactful.

Mia Hobbs:

Interesting, because I was going into a primary

Mia Hobbs:

school to offer a therapeutic knitting group, and a number of

Mia Hobbs:

the staff said, "When are you doing one for staff?" And I also

Mia Hobbs:

love the idea of the parent and child knitting group that you

Mia Hobbs:

started off talking about. I think that's a lovely idea, to

Mia Hobbs:

be able to have an activity to share between parents and

Mia Hobbs:

children. I'd love to ask you about a significant knitting

Mia Hobbs:

project, Susan. Can you think of one, for yourself?

Susan Yaguda:

Yeah, certainly. It's so interesting to hear

Susan Yaguda:

other people's stories about knitting through grief. And I

Susan Yaguda:

think that, for me, I have a pair of socks... it was just

Mia Hobbs:

I guess you want to take really good care of them!

Mia Hobbs:

when I was just getting to knit socks, so I still was not very

Mia Hobbs:

confident about what I was doing. I had to pay attention

Mia Hobbs:

quite some bit. But my dad had gotten ill and finally we got

Mia Hobbs:

him into hospice care, which was such a blessing, and I'll never

Mia Hobbs:

forget sitting with my mom. It was New Year's Eve that year,

Mia Hobbs:

and it was just quiet in his room, and I really just wanted

Mia Hobbs:

to be there for her, as well. And so I had my socks I was

Mia Hobbs:

working on during that time. And I also wanted to give her the

Mia Hobbs:

space to to be with this man that she'd been with for 70

Mia Hobbs:

years, during his final days. So I could work on my socks and

Mia Hobbs:

kind of be there for my mom, but also be in the background for

Mia Hobbs:

her to have some quiet time with him. He ended up dying, like two

Mia Hobbs:

days later, very peacefully. And those socks are just so special

Mia Hobbs:

to me because it just reminds me of how blessed I am to have had

Mia Hobbs:

him for all these years as a father, but also how blessed I

Susan Yaguda:

I do, yeah!

Susan Yaguda:

am to have been in that space with him and my mom. I'm just so

Susan Yaguda:

fortunate to be able to be there, and be there with both of

Susan Yaguda:

them. And for myself, as well. So those are my special socks. I

Susan Yaguda:

don't wear them a whole lot, but I pull them out once in a while.

Mia Hobbs:

It's interesting, Susan, that you mentioned that

Mia Hobbs:

actually, because I think, like you said, grief has come up

Mia Hobbs:

quite a lot when I ask people about a significant knitting

Mia Hobbs:

project. And actually, you're not the first person to mention

Mia Hobbs:

the idea of knitting allowing you to offer kind of

Mia Hobbs:

companionship, but without conversation. So that's

Mia Hobbs:

something that maybe in the grief period... or also other

Mia Hobbs:

people have spoken about being with somebody who's unwell in a

Mia Hobbs:

hospital, and that the idea is you don't necessarily have to

Mia Hobbs:

say anything. And I think in a bereavement period, often there

Mia Hobbs:

isn't anything you can say that can make it any better, but that

Mia Hobbs:

you want to kind of be alongside somebody, and that knitting has

Mia Hobbs:

offered an almost unique way of being able to do that, where it

Mia Hobbs:

feels okay that there isn't a conversation happening at the

Mia Hobbs:

same time.

Susan Yaguda:

Yeah. You're just holding space.

Mia Hobbs:

Yeah. So those are your special socks. And it

Mia Hobbs:

sounds like you've got a very positive relationship to them

Mia Hobbs:

now, even though it was from quite a sad time, in a way,

Mia Hobbs:

also.

Susan Yaguda:

Yeah, most definitely. He lived such an

Susan Yaguda:

amazing life, so it wasn't like there was regret by any means.

Susan Yaguda:

And I think that makes a huge difference in how you process

Susan Yaguda:

loss. I miss him, you know, I still hear his voice telling me

Susan Yaguda:

different things and stuff. But, again, it really comes from a

Susan Yaguda:

place of gratitude, for sure.

Mia Hobbs:

Yeah, sure. So I always end the podcast with

asking:

what's the greatest gift knitting has given you for the

asking:

rest of your life? I don't know what you think of when I ask

asking:

that question.

Susan Yaguda:

Well, it's hard to choose just one. [Laughs]

Susan Yaguda:

Definitely, it's that anchor to a mindfulness practice which has

Susan Yaguda:

been really important to me, particularly through the

Susan Yaguda:

pandemic as well. And again, I love the connection with my

Susan Yaguda:

sisters and my mom, that we have that in common. And then the

Susan Yaguda:

ability just to make something and share a bit of myself with

Susan Yaguda:

somebody else, so that they know a piece of me was with them,

Susan Yaguda:

whether it's a shawl or a sweater or a pair of mittens or

Susan Yaguda:

whatever.

Mia Hobbs:

When you say that, are you talking about gifts?

Susan Yaguda:

Yeah.

Mia Hobbs:

And also in the conversations you have sometimes

Mia Hobbs:

with your patients about knitting - I guess that's a way

Mia Hobbs:

of sharing yourself too, isn't it, to talk about what you're

Mia Hobbs:

knitting or what they're knitting?

Susan Yaguda:

It is. It's a great way to form a connection,

Susan Yaguda:

and then people tend to feel safer, it seems, to talk about

Susan Yaguda:

other things once once you've kind of formed that bond, if you

Susan Yaguda:

will.

Mia Hobbs:

Yeah, sure. Susan, it's been such a pleasure to

Mia Hobbs:

talk to you. Thank you so much for coming on the podcast.

Susan Yaguda:

Thank you so much for having me, and thank you for

Susan Yaguda:

the work that you're doing. You're shining this great light

Susan Yaguda:

on the importance of using knitting and crafting for our

Susan Yaguda:

wellbeing and I really appreciate that you're doing

Susan Yaguda:

that.

Mia Hobbs:

Oh thank you so much.

Mia Hobbs:

Thank you so much for listening to the Why I Knit podcast. If

Mia Hobbs:

you'd like to find out more about therapeutic knitting, you

Mia Hobbs:

can follow me on Instagram @knittingistherapeutic or at my

Mia Hobbs:

website www.therapeuticknitting.org. If

Mia Hobbs:

you're enjoying the podcast, I would really appreciate it if

Mia Hobbs:

you could leave a rating and a review on your podcast app. This

Mia Hobbs:

will help grow the podcast and let more people know about the

Mia Hobbs:

therapeutic benefits of knitting. And don't forget to