TW: Cancer and bereavement
Susan Yaguda is passionate about knitting as a form self-care. She is an oncology nurse who has used knitting with both staff and patients at the Cancer Institute in Charlotte, North Carolina. These have included setting up a knitting group for people who are receiving chemotherapy and developing a study into whether knitting can help with the symptoms of ‘chemobrain’ (problems with memory and thinking after chemotherapy).
We also speak about the importance of supporting health care staff particularly since the pandemic, and the potential for offering knitting as a self-care intervention to prevent burnout.
You can find the full transcript for this episode on the blog.
You can follow Susan on Instagram @knitforhealth
Find out more about Project Knitwell
Find out more about the podcast at the website
Follow Mia on Instagram @knittingistherapeutic
Transcript
Hello and welcome back to series two of the Why I
Mia Hobbs:Knit podcast. My name is Dr. Mia Hobbs and I'm a clinical
Mia Hobbs:psychologist who's passionate about knitting and its benefits
Mia Hobbs:for our mental wellbeing. Each episode I interview a different
Mia Hobbs:knitter about why they knit and how it benefits their mental
Mia Hobbs:health. This week on the podcast I'm joined by Susan Yaguda.
Mia Hobbs:Susan is an oncology nurse working at The Cancer Institute
Mia Hobbs:in Charlotte, North Carolina. Susan joins me to talk about how
Mia Hobbs:knitting has benefited her own wellbeing and also how she's
Mia Hobbs:used knitting in her place of work with both staff and
Mia Hobbs:patients. Please note that during our discussion, we do
Mia Hobbs:talk about cancer and bereavement.
Mia Hobbs:So hi, Susan. Welcome to the podcast.
Susan Yaguda:Good morning! Thank you.
Mia Hobbs:It's afternoon here but morning where you are.
Susan Yaguda:Oh, it's good morning for me!
Mia Hobbs:What's the time where you are?
Susan Yaguda:It's 8 o'clock.
Mia Hobbs:8 o'clock, so early! Thank you so much for joining
Mia Hobbs:me.
Susan Yaguda:That's okay, I'm a morning person.
Mia Hobbs:Oh that's good, me too. I always start the podcast
Mia Hobbs:by asking where your story with knitting began.
Susan Yaguda:I grew up in a family of knitters, to be honest
Susan Yaguda:with you. I'm the youngest of six. My mom, my aunts, my
Susan Yaguda:sisters all knit, growing up. For some reason, I did not. I'm
Susan Yaguda:not sure why. I did some cross stitch and that type of thing
Susan Yaguda:and really enjoyed that. And then when my children were in
Susan Yaguda:Montessori school, they were quite young, and another mom,
Susan Yaguda:who was an amazing knitter, said, "Hey, could we do a
Susan Yaguda:mother-daughter knitting group?" And so I was up for that, and
Susan Yaguda:there were several other moms. So we would get together, the
Susan Yaguda:kids would kind of knit for a few minutes, and then they'd go
Susan Yaguda:off and do their own thing. But we really, as parents, enjoyed
Susan Yaguda:the sense of community and of course learning a new skill.
Susan Yaguda:That was about 20 years ago, I think, as my daughter is now 28.
Susan Yaguda:So I think she was around 8 years old when we did that. And
Susan Yaguda:I haven't stopped since. It's just been such a blessing to my
Susan Yaguda:life for so many reasons that I'm really grateful to that mom
Susan Yaguda:for spearheading it and getting me started on it.
Mia Hobbs:So you hadn't knitted at all before that point?
Susan Yaguda:No.
Mia Hobbs:Oh wow!
Susan Yaguda:The funny thing is now, my sisters and my mom... my
Mia Hobbs:Yeah. So it really feels like part of your
Mia Hobbs:mom is quite elderly so she doesn't knit as much now, but my
Mia Hobbs:two sisters and I get together with my mom (particularly before
Mia Hobbs:the pandemic we would) for what we would call a girls weekend.
Mia Hobbs:We all had our knitting projects and have tea and good food and
Mia Hobbs:wine and just really enjoy a nice weekend together, and
Mia Hobbs:that's such precious time when I think about it now, that we just
Mia Hobbs:enjoyed one another's company, but it was always around
Mia Hobbs:knitting too. Sometimes we would go to the local yarn shop where
Mia Hobbs:my mom lives and just enjoy that as well. So now we all share
Mia Hobbs:patterns. We ask each other about different techniques we
Mia Hobbs:might have questions about, and so it's really become something
Mia Hobbs:that I'm very... I'm very close to my sisters but it's been
Mia Hobbs:really a nice thing to bond us as well.
Mia Hobbs:connection with your family now?
Susan Yaguda:Yeah!
Mia Hobbs:And do your kids still knit?
Susan Yaguda:I have a son and a daughter, and thinking back like
Susan Yaguda:20 years ago, I did teach my son how to knit and he's actually
Susan Yaguda:very good. He didn't keep it up, though. And my daughter, she'll
Susan Yaguda:pick it up from time to time. She actually lives in the UK
Susan Yaguda:now. And so, you know, being away from home has been
Susan Yaguda:difficult during these past couple of years. And so I really
Susan Yaguda:have encouraged her because it's been so helpful to me to have
Susan Yaguda:something in my hands. And so she'll pick it up now and then,
Susan Yaguda:and does still enjoy it, so who knows what she might do in 20
Susan Yaguda:years? So we'll see.
Mia Hobbs:I think lots of people that I've interviewed,
Mia Hobbs:and certainly for me, have had long dormant periods where they
Mia Hobbs:didn't knit, and then suddenly it was the right moment in their
Mia Hobbs:life, and they pick it up and kind of go with it again. You
Mia Hobbs:said there are many ways it's been helpful for you. I'd love
to hear more about that:about why you knit and how it's been
to hear more about that:helpful for you.
Susan Yaguda:So the practicality of it - I really
Susan Yaguda:enjoy giving homemade gifts, handmade gifts to people. So
Susan Yaguda:that's definitely part of it. I'm a little choosier now, who I
Susan Yaguda:gift with my knitting, because I think I hear other knitters say
Susan Yaguda:too, some people don't quite get it. But definitely, I have an
Susan Yaguda:appreciative pool of family and friends, and enjoy doing that
Susan Yaguda:for them. But really it's a mindfulness practice for me.
Susan Yaguda:It's definitely a way... sometimes for me in the morning,
Susan Yaguda:when I'm having my coffee, I'll just knit even if it's just for
Susan Yaguda:five minutes. It just sets my day straight with a calmer
Susan Yaguda:attitude, I think, about going into the day. And then
Susan Yaguda:definitely towards the end of the day, too, I might have a cup
Susan Yaguda:of tea and just pick up my knitting again. Even if I only
Susan Yaguda:have a few minutes to do it, I still appreciate those moments,
Susan Yaguda:just to de-stress, to kind of let go of anything that was
Susan Yaguda:going on during the day so that I can get a restful night's
Susan Yaguda:sleep. It really is a very big mindfulness practice for me.
Susan Yaguda:Other than my sisters, I don't knit a whole lot with others.
Susan Yaguda:But there is a sense of community, I think, around the
Susan Yaguda:knitting world, whether that's through social media or going to
Susan Yaguda:a local yarn shop. You can always talk to a knitter about
Susan Yaguda:what they're doing, what they're interested in, and it inevitably
Susan Yaguda:leads to other conversations too, that keep that kind of
Susan Yaguda:sense of connectivity amongst us. And I think, particularly
Susan Yaguda:during this pandemic time where we often feel disconnected, it's
Susan Yaguda:really an important tool to to being connected with one
Susan Yaguda:another. In my work it's really been important to connect with
Susan Yaguda:patients even, and to allow them to connect with one another. So
Susan Yaguda:I would say between being able to produce something that is
Susan Yaguda:homemade and I can gift from my heart, to the mindfulness
Susan Yaguda:practice, and then the connectivity piece of it, too,
Susan Yaguda:it's just been a really rich hobby to have in my life.
Mia Hobbs:I'd love to go on to ask you, in a minute, more about
Mia Hobbs:your work and how you've used knitting there. But first of
Mia Hobbs:all, I'm curious for yourself, like have you got specific
Mia Hobbs:things you prefer to knit? Does it matter what the knitting is,
Mia Hobbs:in terms of the techniques?
Susan Yaguda:Yeah. So I usually have two things typically going
Susan Yaguda:at once, and one is kind of a no-brainer - I can sit in a
Susan Yaguda:meeting and it helps me pay attention, but not have to count
Susan Yaguda:or follow a pattern or that type of thing. And then I like to
Susan Yaguda:knit just about anything. I've gotten into socks and go in
Susan Yaguda:spurts with that. Mittens... I had like a run on mittens! And
Susan Yaguda:I'm working on a sweater right now for a friend's birthday.
Susan Yaguda:Shawls... I really, really love to make shawls, especially if
Susan Yaguda:the designer has some really clear instructions. Hats off to
Susan Yaguda:designers! I think that it's just magic what they do, you
Susan Yaguda:know, to be able to create a pattern, put it on paper, so
Susan Yaguda:that I can just blindly follow the directions and then voila!
Susan Yaguda:Here comes some beautiful piece, you know, just because they've
Susan Yaguda:had that skill set to do that. So I do love to make shawls. I
Susan Yaguda:haven't done certain techniques, like brioche I haven't tried.
Mia Hobbs:I haven't either, actually! I wondered whether
Mia Hobbs:maybe this was the year for me. [Laughs]
Susan Yaguda:Yeah, me too! [Laughs] Yeah, so maybe try
Susan Yaguda:that. I've done some lace work, and again I've enjoyed that,you
Susan Yaguda:know, as long as I am able to pay attention to it as well. So
Susan Yaguda:having something that's mindless, and then having
Susan Yaguda:something where I do have to pay attention a little bit. I love
Susan Yaguda:cables - to me they're magic as well, just how slipping one
Susan Yaguda:direction or another just makes this beautiful pattern! And it's
Susan Yaguda:fun to work on those too.
Mia Hobbs:So have you got times when you feel like you need the
Mia Hobbs:more complicated pattern? It sounds like there are times
Mia Hobbs:where you need the simple one, which is if you've got to pay
Mia Hobbs:attention to something else. I'm interested in the times you
Mia Hobbs:might need the more complicated one.
Susan Yaguda:Yeah, when you have to pay attention to
Susan Yaguda:something, follow directions, make sure you're counting
Susan Yaguda:properly, it kind of takes your mind away from other things that
Susan Yaguda:might have been creating stress in your life or things you kind
Susan Yaguda:of need to let go of. It's a nice distraction, if you will.
Susan Yaguda:And then after working on something for a bit, the stuff
Susan Yaguda:that was bothering you previously just doesn't seem to
Susan Yaguda:be a big deal anymore and you can kind of let it go until
Susan Yaguda:maybe the next day. And you'll address it with fresh eyes and
Susan Yaguda:be able to maybe be more productive in how to manage
Susan Yaguda:something that was going on. So there's also definitely times
Susan Yaguda:where I'm like, "I can't concentrate on this right now.
Susan Yaguda:I'm just going to enjoy the soothing aspect of the rhythm of
Susan Yaguda:knitting and just feeling it in my hands, and go forward with
Susan Yaguda:that, too."
Mia Hobbs:Yeah. You're a nurse, working in oncology, and I'm
Mia Hobbs:really interested to hear about how you've brought knitting into
Mia Hobbs:your place of work. I'd love to hear more about that.
Susan Yaguda:Yeah, thank you! So I manage a team of
Susan Yaguda:integrative providers. We have a wide array of services. So we
Susan Yaguda:don't treat cancer itself, but we help support people through
Susan Yaguda:their cancer journey at any aspect along the way. And part
Susan Yaguda:of my team is we have a group of artists. And so one of my
Susan Yaguda:artists had started with us as a volunteer, and then we were able
Susan Yaguda:to contract and bring her on, and she's just amazing. My whole
Susan Yaguda:team is amazing, but she was really just open to anything.
Susan Yaguda:And I said, "Hey, I really want to start a knitting and crochet
Susan Yaguda:circle for our patients and care partners." And she was like,
Susan Yaguda:"Sure, okay, but I need to learn how." [Laughs] So she went off
Susan Yaguda:and took some lessons at a local yarn shop. And, of course, this
Susan Yaguda:was several years ago, so she's a great knitter now, as well.
Susan Yaguda:And so she started this group. Now it's on Zoom because we're
Susan Yaguda:not meeting in person (hopefully, at some point in the
Susan Yaguda:future), but I'm really happy that we were able to still
Susan Yaguda:provide things virtually even, to help people stay connected.
Susan Yaguda:And so the purpose of the group was not to do great knitting,
Susan Yaguda:just like the purpose of the art programme is not to create great
Susan Yaguda:art but it's really to use it as a processing opportunity to have
Susan Yaguda:patients and care partners support one another. There's
Susan Yaguda:something about when people have something that they're working
Susan Yaguda:on in their hands, and for this group, obviously, it was
Susan Yaguda:knitting, the conversation becomes much better flowing, I
Susan Yaguda:think. People feel a little bit more comfortable sharing. They
Susan Yaguda:find that they have shared experiences and can maybe have
Susan Yaguda:their own experience authenticated because they're
Susan Yaguda:hearing it from somebody else. It's just a very healing process
Susan Yaguda:to have that type of support. And so Deborah, our artist that
Susan Yaguda:was facilitating this and continues to, really her role is
Susan Yaguda:just to maintain inclusivity with the group, to make sure
Susan Yaguda:that the environment remains positive, that people feel
Susan Yaguda:comfortable talking and sharing. And it's been just a really
Susan Yaguda:positive experience all around. We also had some fun things come
Susan Yaguda:out of that for community. So in our community, there's several
Susan Yaguda:organisations. We're very philanthropically dependent, and
Susan Yaguda:they help support us. And one is an organisation called 24
Susan Yaguda:Foundation that does a 24-hour bike ride every summer in
Susan Yaguda:Charlotte, where I live. It's a fundraiser, and a lot of those
Susan Yaguda:funds go to support the programmes that I manage. And so
Susan Yaguda:we got a bicycle, an older bicycle, and the people in the
Susan Yaguda:knitting and crochet circle yarn bombed it! It's so cool-looking.
Susan Yaguda:They did an amazing job. They had yarn bombed two chairs the
Susan Yaguda:year previously, and we displayed them at a gala that we
Susan Yaguda:had too, but this bike was something that we could give
Susan Yaguda:back to the organisation that supports us, just as a way to
Susan Yaguda:say thank you for all. So we bring it out when we have events
Susan Yaguda:with them, and they in turn have gifted it back to us, and it's
Susan Yaguda:actually hanging in our cancer rehab gym. But it's always just
Susan Yaguda:a really nice reminder that we are all community supporting one
Susan Yaguda:another through that. So that's been just fun. The chairs that
Susan Yaguda:they did, it was really whimsical, little mice and
Susan Yaguda:spider webs, and they did a beautiful job with that. And
Susan Yaguda:those are on display in our cancer institution now, so
Susan Yaguda:anybody can walk by and just enjoy taking a look at them. And
Susan Yaguda:then from a medical perspective, I mean this is purely anecdotal,
Susan Yaguda:but we had several patients who got chemotherapies that cause
Susan Yaguda:neurotoxicity, and they can get neuropathy in their hands and
Susan Yaguda:their feet, like a tingling and numbness. It really can be
Susan Yaguda:distressing and impactful on things, even like buttoning a
Susan Yaguda:shirt or walking safely, that type of thing. And one woman who
Susan Yaguda:was really involved in this group also said that the
Susan Yaguda:knitting helped her neuropathy, and she said, "If I could figure
Susan Yaguda:out a way to knit with my toes, I could address it in my feet as
Susan Yaguda:well!" But she swore that it was just keeping herself moving like
Susan Yaguda:that, and maybe the tactile part of knitting, that helped her. So
Susan Yaguda:that would be something that I would love to study at some
Susan Yaguda:point. Can we really be impactful on that with something
Susan Yaguda:so simple and low cost and extremely low risk, and make an
Susan Yaguda:impact on something that really can be distressing to somebody
Susan Yaguda:who's gone through cancer treatment.
Mia Hobbs:What's the kind of feedback you've had from people
Mia Hobbs:who've engaged in the knitting, so some of the people receiving
Mia Hobbs:treatment for cancer?
Susan Yaguda:It's really heartwarming to go into the
Susan Yaguda:infusion suite and see people there knitting as a way to pass
Susan Yaguda:the time. Oftentimes, they're there for several hours.
Mia Hobbs:Is that when they're receiving their chemotherapy?
Susan Yaguda:Yeah. And they really appreciate the community.
Susan Yaguda:They come together when... you know, inevitably we have to say
Susan Yaguda:goodbye to certain people at different times, and they really
Susan Yaguda:come together as a community to support one another through that
Susan Yaguda:grieving process. I think it also shines the light on...
Susan Yaguda:well, for all of us but especially if you also are
Susan Yaguda:dealing with cancer... your own mortality, and really coming to
Susan Yaguda:terms with that, because you've lost somebody that you've been
Susan Yaguda:close to. So I really appreciate that they form kind of a support
Susan Yaguda:group amongst themselves. So that has been definitely one of
Susan Yaguda:the outcomes that I was hoping for. The other thing is they
Susan Yaguda:really have appreciated, particularly during the
Susan Yaguda:pandemic, having knitting as a hobby to continue with during
Susan Yaguda:their time when they've had to be more isolated, as well. The
Susan Yaguda:other thing that is so cool about this group is they also...
Susan Yaguda:(this wasn't intentional, they just kind of came up with this
Susan Yaguda:organically)... they'll knit caps for patients who have lost
Susan Yaguda:their hair because of chemotherapy, scarves,
Susan Yaguda:fingerless mitts, that type of thing, and then they go to our
Susan Yaguda:resource centre and then anybody who's in need can take something
Susan Yaguda:like that. To know that it came from somebody else who has
Susan Yaguda:walked your path as well, I think is really meaningful.
Mia Hobbs:There's a project here actually, that I've seen on
Mia Hobbs:the news, called Knitted Knockers. I don't know if you've
Mia Hobbs:heard of that?
Susan Yaguda:Oh yeah! We did that. People continue to make
Susan Yaguda:knockers. It's really taken off, hasn't it? It's so fun. And, you
Susan Yaguda:know, women who require a prosthesis really like the
Susan Yaguda:knitted knockers. They're soft, they're light, they're washable,
Susan Yaguda:you can form them to fit yourselves perfectly, they're
Susan Yaguda:free... you know, prostheses can be very expensive. With some
Susan Yaguda:local yarn shops in our community, we did a knitted
Susan Yaguda:knocker campaign, and then the fire department has a pink
Susan Yaguda:firetruck and so they stopped at the yarn shops, and we filled
Susan Yaguda:the firetruck up with knitted knockers! There were bags of
Susan Yaguda:them! [Laughs] And then they delivered them to the Cancer
Susan Yaguda:Institute, then we had to sort them and get them where they
Susan Yaguda:needed to be in that way. But that was such, again, another
Susan Yaguda:fun community project.
Mia Hobbs:It sounds like some of the people in the group have
Mia Hobbs:been very inventive about finding ways to have a more kind
Mia Hobbs:of group knitting experience. Because I guess a lot of us,
Mia Hobbs:even if we're knitting in a group, often the project is just
Mia Hobbs:ours, I suppose, or we might be knitting something that's just
Mia Hobbs:ours. It's not that often you knit something that is part of a
Mia Hobbs:kind of cooperative project.
Susan Yaguda:Yeah, we really saw it particularly when they
Mia Hobbs:Yeah. And have you had the opportunity to go and
Mia Hobbs:were able to meet in person and work on the yarn bombing pieces,
Mia Hobbs:because they had to kind of plan it out together. And again,
Mia Hobbs:nobody was telling anybody, "Here, you have to do this." It
Mia Hobbs:just all came very organically. But it was fun to kind of be a
Mia Hobbs:fly on the wall and just peek in and watch them and hear their
Mia Hobbs:conversations. It just really fills my heart because that was
Mia Hobbs:exactly what I wanted when I said, "Can we start this?"
Mia Hobbs:join in with knitting with them at all? Or is that difficult?
Susan Yaguda:I haven't since they have gone to Zoom, and it's
Susan Yaguda:also during my work day. So sometimes I don't have the time
Susan Yaguda:to do that during the work day. But when they did meet in
Susan Yaguda:person, I would often just stop by, because they're lovely
Susan Yaguda:people anyway so I would always love to catch up with them
Susan Yaguda:regardless, but just to again, like I said, hear their
Susan Yaguda:conversation and see what they were working on. To see them
Susan Yaguda:helping each other, because there were some that were very,
Susan Yaguda:very skilled knitters helping others that are maybe new at
Susan Yaguda:something, new to knitting or new at a technique, and really
Susan Yaguda:to have that fellowship within the group is really precious to watch.
Mia Hobbs:Yeah. And that's brilliant for both parties,
Mia Hobbs:isn't it? It's brilliant to be somebody who can share a skill.
Mia Hobbs:That gives you a sense of self esteem, I guess, doesn't it? And
Mia Hobbs:also to be able to be somewhere where you think, "Oh, these
Mia Hobbs:experienced people can help me with this thing I'd like to get
Mia Hobbs:better at."
Susan Yaguda:Yeah, definitely. It definitely goes both
Susan Yaguda:directions.
Mia Hobbs:Yeah. And you mentioned that you've been
Mia Hobbs:involved in a research project to do with knitting. I'd love to
Mia Hobbs:hear a bit more about that.
Susan Yaguda:Yeah, sure. So one thing that patients receiving
Susan Yaguda:chemotherapy sometimes experience is something called
Susan Yaguda:chemo brain. And if you're not familiar with that, it is just
Susan Yaguda:difficulty after finishing chemo or even during, with tasks that
Susan Yaguda:normally would have come easily to you. So it could be things
Susan Yaguda:like sequencing or memory issues or word finding even sometimes,
Susan Yaguda:and it's very distressing to patients to experience this. And
Susan Yaguda:it's especially distressing when they finally finish treatment
Susan Yaguda:and then they're like, "Okay, I'm going back to work." You
Susan Yaguda:know, it's like some sense of hopefully some normalcy in their
Susan Yaguda:lives again, but then they're having really some difficulties
Susan Yaguda:functioning to their pre-cancer diagnosis levels. And so one of
Susan Yaguda:my colleagues is a neuropsychologist and she
Susan Yaguda:started knitting because we... This is another story, but we
Susan Yaguda:started with my teammates. We had a couple of knit nights and
Susan Yaguda:taught them how to knit, and several of my teammates
Susan Yaguda:continued to knit as well, which has been really fun. And Jen,
Susan Yaguda:the neuropsychologist, is one of those that has continued to
Susan Yaguda:that. And so finally, I was like, "I know how knitting makes
Susan Yaguda:me feel, as far as calming my mind and all of that." And we
Susan Yaguda:got talking about the bilateral aspects of knitting, and we also
Susan Yaguda:were thinking about chemo brain. It's not fully understood, why
Susan Yaguda:it occurs. It could be related to inflammation or who knows.
Susan Yaguda:But we were looking through the literature and did not see
Susan Yaguda:anything that looked at increasing neuroplasticity
Susan Yaguda:around cancer-related cognitive impairments. And so we wanted to
see:could teaching somebody to knit make an impact on their
see:cognitive impairment? So we did a pilot study, and we had the
see:support from Universal Yarn, which is a big yarn company,
see:particularly here in the US - I think it is in Europe, too. They
see:have a headquarters very close to Charlotte, and they provided
see:us with yarn and with needles and really put together these
see:nice kits for the study. And we enrolled patients who had
see:finished the chemotherapy and were self-describing some
see:cognitive impairment. And they could not have been knitters
see:before, so it had to be completely a new skill. And then
see:they came in and we gave them a battery of neuropsych tests,
see:which are all validated for the age group within the inclusion
see:criteria. And then we had a volunteer working with us, and
see:she taught them to knit. And so she would have groups of maybe
see:1-3 women. They were all women. It wasn't designed to be all
see:women, but that's the way it fell, which I think is another
see:thing I'd like to change at some point along the road.
Mia Hobbs:So that was who opted in?
Susan Yaguda:Yeah. They learned to knit. They got a project - it
Susan Yaguda:was a scarf. And then they had another lesson, we gave them
Susan Yaguda:videos, we checked in with them every week, and then 8 weeks
Susan Yaguda:later they came back in. They had to have at least 8 inches of
Susan Yaguda:their scarf done so we knew that they were doing it. So we had to
Susan Yaguda:measure it, and then they were re-tested. And what we found was
Susan Yaguda:really fascinating, in my opinion. All of them tested
Susan Yaguda:within the normal range at the start; however, it may have been
Susan Yaguda:low for them. They were all college educated, they were all
Susan Yaguda:professionals, that's the group that we got for this pilot.
Susan Yaguda:However, the distress levels were quite high across the
Susan Yaguda:group. Post-intervention, they all improved cognitively, in
Susan Yaguda:certain domains at least. I think almost 70% of the group
Susan Yaguda:improved cognitively in at least one of the domains that we
Susan Yaguda:tested. Across the board, they all significantly reported less
Susan Yaguda:distress. That was just really validating, that there's
Susan Yaguda:something going on, whether it is neuroplasticity, or whether
Susan Yaguda:it's decreasing stress so you're able to manage some of those
Susan Yaguda:challenges better. I mean, who knows? We're really eager to dig
Susan Yaguda:a little bit deeper into the whole 'what's happening behind
Susan Yaguda:the veil' kind of thing. We had to close accrual early because
Mia Hobbs:Because like you said, from a research
Mia Hobbs:of the pandemic. We ended up with 16 people, I think, going
Mia Hobbs:through and we'd wanted to get 18, I think. So just a little
Mia Hobbs:perspective, it would be great. It's such a shame you had to
Mia Hobbs:bit short of our original goal, but enough to have some
Mia Hobbs:significant data. And to this day, I hear from people in the
Mia Hobbs:finish early because of COVID. And it'd be great to do a trial
Mia Hobbs:study and they're still knitting! That's another win of
Mia Hobbs:the whole thing. So I look at this as such a low-hanging fruit
Mia Hobbs:with a control group and lots of measures. But even without that,
Mia Hobbs:for an intervention for a condition that is incredibly
Mia Hobbs:distressing for our patients, and how simple it could be, how
Mia Hobbs:it sounds like it has offered a great benefit, even just
Mia Hobbs:inexpensive it could be, how low risk it could be to really
Mia Hobbs:provide this for people who are interested.
Mia Hobbs:anecdotally, or in terms of stress reduction, or giving
Mia Hobbs:people a coping mechanism to take with them for the rest of
Mia Hobbs:their lives. That sounds like it actually has been a super
Mia Hobbs:helpful intervention already.
Susan Yaguda:Yeah. And the neuropsych tasks were all
Susan Yaguda:validated tasks, so we really felt confident about those. They
Susan Yaguda:weren't tasks that you could do well with repetition, you know,
Susan Yaguda:we made sure we didn't have that practice benefit with the tests
Susan Yaguda:that she chose. So we do know that there was benefit. But
Susan Yaguda:yeah, to have a control group would have been nice, since they
Susan Yaguda:were each their own control, but there's so many areas that we
Susan Yaguda:could dig in and explore further that it makes it exciting, for
Susan Yaguda:sure.
Mia Hobbs:And I think you mentioned, while we were
Mia Hobbs:messaging about setting up this conversation, that you'd quite
Mia Hobbs:like to have a group for professionals as well, so for
Mia Hobbs:healthcare staff. I haven't done it formally for that purpose,
Mia Hobbs:but in the past I've informally ended up having groups of
Mia Hobbs:colleagues in health settings to mainly create gifts for somebody
Mia Hobbs:who's having a baby, but have really noticed the positive
Mia Hobbs:effect it's had on team morale, and that we've had different
Mia Hobbs:conversations, that people have been kind of taking a lunch
Mia Hobbs:break for half an hour, once a week, to sit and knit together,
Mia Hobbs:and that it really did feel beneficial, I suppose, on a team
Mia Hobbs:level. I'm interested in what your hopes were for that.
Susan Yaguda:Yeah, definitely. So we did do for just my
Susan Yaguda:department. At the time, we were in a different location while
Susan Yaguda:our current building was being built, and it was tight
Susan Yaguda:quarters, you know, which has its own challenges. But we had a
Susan Yaguda:couple of knit nights, and it was just a time again, for
Susan Yaguda:whomever wanted to, to come together, learn to knit. And
Susan Yaguda:then, similar to what you're talking about, we did find
Susan Yaguda:people sitting at lunchtime knitting. And then we also found
Susan Yaguda:we were able to help each other out with questions about a
Susan Yaguda:skill, or, "Oh, I dropped a stitch. What happened here?",
Susan Yaguda:that type of thing. And it did allow us as a group of
Susan Yaguda:colleagues to interact on a bit of a different level. And then
Susan Yaguda:several of my colleagues really use knitting now as a self care
Susan Yaguda:practice. It's a relaxing thing that they go to daily, almost,
Susan Yaguda:in order to just take better care of themselves. So that's
Susan Yaguda:been really positive. I think, you know, it's no surprise to
Susan Yaguda:anybody how strained the health care profession is right now,
Susan Yaguda:globally. And interestingly, before the pandemic, I had been
Susan Yaguda:working with some other people on my team on moral injury and
Susan Yaguda:resilience, and what can we do to help support one another, to
Susan Yaguda:build up resilience and address moral injury in a positive way.
Susan Yaguda:And then to think that we were doing that work before COVID,
Susan Yaguda:and now what people are having to deal with still two years
Susan Yaguda:later, it's unfathomable. And I really feel like we need to now
Susan Yaguda:kind of shift gears and look at trauma care. How are we helping
Susan Yaguda:our colleagues through trauma, because that's what this has
Susan Yaguda:been, for so many people. And I don't want to simplify things to
Susan Yaguda:the point of saying, "Oh, just give everybody knitting needles
Susan Yaguda:and some yarn, and it's all fine." But I do think that
Susan Yaguda:knitting serves a role in the toolbox as a self care practice,
Susan Yaguda:as a way of soothing. We know that the rhythm of the movement,
Susan Yaguda:of using both hands, has neurological impact. And so I do
Susan Yaguda:think that it could be a useful tool for colleagues to be able
Susan Yaguda:to use for self care. There was a study that some nurses in
Susan Yaguda:Washington did, that I think Project Knitwell helped support.
Susan Yaguda:And again, this was several years ago, with oncology nurses.
Susan Yaguda:They taught them to knit, and the outcomes and the feedback
Susan Yaguda:from those who participated was really positive, how it was
Susan Yaguda:really soothing. And when I was re-reading the manuscript,
Susan Yaguda:"soothing" kind of kept coming up, and I kind of feel like
Susan Yaguda:yeah, it is soothing. And that's maybe part of the benefit of us
Susan Yaguda:bringing it to somebody. We're not going to fix the issues in
Susan Yaguda:our healthcare system by knitting, but if we can help
Susan Yaguda:somebody feel better for a little bit of time and then be
Susan Yaguda:able to be a bit more refreshed to go handle what they need to
Susan Yaguda:handle, then maybe that's our role at this point. So I'm
Susan Yaguda:looking at creating honestly like a toolkit for my
Susan Yaguda:colleagues, our teammates across our system, that has a variety
Susan Yaguda:of ways to take care of yourself and to address the trauma of
Susan Yaguda:what you have experienced during all this time. So I think it
Susan Yaguda:will definitely have a role there.
Mia Hobbs:Yeah, I think that's really true. I've had quite a
Mia Hobbs:few health professionals get in touch with me since starting the
Mia Hobbs:podcast, talking about the idea of having a group with their
Mia Hobbs:colleagues. And I think the tricky thing is, like you said,
Mia Hobbs:it doesn't have to be just knitting, and knitting isn't
Mia Hobbs:going to be for everybody, but the idea of maybe the system or
Mia Hobbs:prioritising self care for the health care staff, because you
Mia Hobbs:can't pour from an empty cup. And in the pandemic, it started
Mia Hobbs:off as a sprint and it's now a marathon. But people are just
Mia Hobbs:getting slowly more exhausted, I guess, and like you said,
Mia Hobbs:traumatised. But it is interesting, the idea of one of
Mia Hobbs:the trauma therapies, EMDR, is focused on using bilateral
Mia Hobbs:movements a bit similar to knitting. And when I spoke to
Mia Hobbs:Betsan Corkhill, I interviewed her for series one about that,
Mia Hobbs:and she said there have been ideas about doing some studies
Mia Hobbs:using knitting as the bilateral movement in the EMDR, so trauma
Mia Hobbs:processing. So it'd be really interesting. I think the tricky
Mia Hobbs:thing is funding for all of these studies.
Susan Yaguda:Most definitely.
Mia Hobbs:And also for the self care for the health
Mia Hobbs:professionals! That's also the problem, isn't it? Getting that
Mia Hobbs:as a priority and funding it.
Susan Yaguda:Yeah, most definitely. However, if you look
Susan Yaguda:at the cost of replacing a critical care nurse, for
Susan Yaguda:example, it's quite costly, especially somebody who has a
Susan Yaguda:lot of experience. And then who are we replacing them with? So I
Susan Yaguda:think that's one thing. And, you know, I'm talking about health
Susan Yaguda:care professionals but it's really across the board. My
Susan Yaguda:heart breaks for our teachers, for parents with young children,
Susan Yaguda:and how they're managing all of this and trying to work and keep
Susan Yaguda:their children happy and healthy. It's across the board -
Susan Yaguda:service providers of any sort. Our resources are not an
Susan Yaguda:unending bucket. There is a bottom to that. So if we don't
Susan Yaguda:start to really take care of what we've got, it's going to be
Susan Yaguda:quite impactful.
Mia Hobbs:Interesting, because I was going into a primary
Mia Hobbs:school to offer a therapeutic knitting group, and a number of
Mia Hobbs:the staff said, "When are you doing one for staff?" And I also
Mia Hobbs:love the idea of the parent and child knitting group that you
Mia Hobbs:started off talking about. I think that's a lovely idea, to
Mia Hobbs:be able to have an activity to share between parents and
Mia Hobbs:children. I'd love to ask you about a significant knitting
Mia Hobbs:project, Susan. Can you think of one, for yourself?
Susan Yaguda:Yeah, certainly. It's so interesting to hear
Susan Yaguda:other people's stories about knitting through grief. And I
Susan Yaguda:think that, for me, I have a pair of socks... it was just
Mia Hobbs:I guess you want to take really good care of them!
Mia Hobbs:when I was just getting to knit socks, so I still was not very
Mia Hobbs:confident about what I was doing. I had to pay attention
Mia Hobbs:quite some bit. But my dad had gotten ill and finally we got
Mia Hobbs:him into hospice care, which was such a blessing, and I'll never
Mia Hobbs:forget sitting with my mom. It was New Year's Eve that year,
Mia Hobbs:and it was just quiet in his room, and I really just wanted
Mia Hobbs:to be there for her, as well. And so I had my socks I was
Mia Hobbs:working on during that time. And I also wanted to give her the
Mia Hobbs:space to to be with this man that she'd been with for 70
Mia Hobbs:years, during his final days. So I could work on my socks and
Mia Hobbs:kind of be there for my mom, but also be in the background for
Mia Hobbs:her to have some quiet time with him. He ended up dying, like two
Mia Hobbs:days later, very peacefully. And those socks are just so special
Mia Hobbs:to me because it just reminds me of how blessed I am to have had
Mia Hobbs:him for all these years as a father, but also how blessed I
Susan Yaguda:I do, yeah!
Susan Yaguda:am to have been in that space with him and my mom. I'm just so
Susan Yaguda:fortunate to be able to be there, and be there with both of
Susan Yaguda:them. And for myself, as well. So those are my special socks. I
Susan Yaguda:don't wear them a whole lot, but I pull them out once in a while.
Mia Hobbs:It's interesting, Susan, that you mentioned that
Mia Hobbs:actually, because I think, like you said, grief has come up
Mia Hobbs:quite a lot when I ask people about a significant knitting
Mia Hobbs:project. And actually, you're not the first person to mention
Mia Hobbs:the idea of knitting allowing you to offer kind of
Mia Hobbs:companionship, but without conversation. So that's
Mia Hobbs:something that maybe in the grief period... or also other
Mia Hobbs:people have spoken about being with somebody who's unwell in a
Mia Hobbs:hospital, and that the idea is you don't necessarily have to
Mia Hobbs:say anything. And I think in a bereavement period, often there
Mia Hobbs:isn't anything you can say that can make it any better, but that
Mia Hobbs:you want to kind of be alongside somebody, and that knitting has
Mia Hobbs:offered an almost unique way of being able to do that, where it
Mia Hobbs:feels okay that there isn't a conversation happening at the
Mia Hobbs:same time.
Susan Yaguda:Yeah. You're just holding space.
Mia Hobbs:Yeah. So those are your special socks. And it
Mia Hobbs:sounds like you've got a very positive relationship to them
Mia Hobbs:now, even though it was from quite a sad time, in a way,
Mia Hobbs:also.
Susan Yaguda:Yeah, most definitely. He lived such an
Susan Yaguda:amazing life, so it wasn't like there was regret by any means.
Susan Yaguda:And I think that makes a huge difference in how you process
Susan Yaguda:loss. I miss him, you know, I still hear his voice telling me
Susan Yaguda:different things and stuff. But, again, it really comes from a
Susan Yaguda:place of gratitude, for sure.
Mia Hobbs:Yeah, sure. So I always end the podcast with
asking:what's the greatest gift knitting has given you for the
asking:rest of your life? I don't know what you think of when I ask
asking:that question.
Susan Yaguda:Well, it's hard to choose just one. [Laughs]
Susan Yaguda:Definitely, it's that anchor to a mindfulness practice which has
Susan Yaguda:been really important to me, particularly through the
Susan Yaguda:pandemic as well. And again, I love the connection with my
Susan Yaguda:sisters and my mom, that we have that in common. And then the
Susan Yaguda:ability just to make something and share a bit of myself with
Susan Yaguda:somebody else, so that they know a piece of me was with them,
Susan Yaguda:whether it's a shawl or a sweater or a pair of mittens or
Susan Yaguda:whatever.
Mia Hobbs:When you say that, are you talking about gifts?
Susan Yaguda:Yeah.
Mia Hobbs:And also in the conversations you have sometimes
Mia Hobbs:with your patients about knitting - I guess that's a way
Mia Hobbs:of sharing yourself too, isn't it, to talk about what you're
Mia Hobbs:knitting or what they're knitting?
Susan Yaguda:It is. It's a great way to form a connection,
Susan Yaguda:and then people tend to feel safer, it seems, to talk about
Susan Yaguda:other things once once you've kind of formed that bond, if you
Susan Yaguda:will.
Mia Hobbs:Yeah, sure. Susan, it's been such a pleasure to
Mia Hobbs:talk to you. Thank you so much for coming on the podcast.
Susan Yaguda:Thank you so much for having me, and thank you for
Susan Yaguda:the work that you're doing. You're shining this great light
Susan Yaguda:on the importance of using knitting and crafting for our
Susan Yaguda:wellbeing and I really appreciate that you're doing
Susan Yaguda:that.
Mia Hobbs:Oh thank you so much.
Mia Hobbs:Thank you so much for listening to the Why I Knit podcast. If
Mia Hobbs:you'd like to find out more about therapeutic knitting, you
Mia Hobbs:can follow me on Instagram @knittingistherapeutic or at my
Mia Hobbs:website www.therapeuticknitting.org. If
Mia Hobbs:you're enjoying the podcast, I would really appreciate it if
Mia Hobbs:you could leave a rating and a review on your podcast app. This
Mia Hobbs:will help grow the podcast and let more people know about the
Mia Hobbs:therapeutic benefits of knitting. And don't forget to